A secure democratic Net is a fundamental right

and the soldiers since 2006 in this battle in the US for the moment (but of which the EU is also dreaming as our ehealth gurus) are also the world privacy forum and not without success

their most important documents are

the report (2006)

best practices

extension of ehealth to the pharma sector  and this is closely linked to their viewpoints on genetic privacy (is less futuristic than it looks)

and also about

the personal health systems (Google, Microsoft) Personal Health Records: Why Many PHRs Threaten Privacy (PDF, 16 pages)

and this is made clear by their recommendations which make it directly clear that the ordinary citizen will not have the knowledge, time or resources to fully understand what the consequences are of agreeing to make a personal health file

more info on their special page